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Fibromyalgia, essays and exams

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Written by babz 17. Jun 2008 06:03 PM

Well I'm back after my study break, turns out I nearly exploded without having anywhere to vent...

Main news is that last week I was diagnosed with fibromyalgia - I officially now have more labels than officeworks. I didn't understand the full impact of this diagnosis initially but did some research and it doesn't sound good. It especially doesn't sound compatible with the lifestyle of an elite athlete. That is what really crushed me - I could live with all the pain and illness in the world as long as I could still skate.

The doctor explained it to me, how it is often related to physical and/or emotional trauma, PTSD and can make bipolar and BPD worse. It also explains the troubles I've had with my stomach and memory over the past few years. As much as I dislike the condition and want to convince myself that I don't have it, it fits scarily well and explains a lot of medical problems that have been unexplainable leaving me convinced that I'm crazy and it's all in my head. The pieces of the jigsaw fell together, but instead of relief that I'm not subconsciously 'faking it' all I feel is overwhelming anger that something else has gone wrong when I thought I'd gotten back on my feet.

But yet again, old my-own-worst-nightmare me is on the case, trying to sweep it under the rug, tell myself that it'll be fine, no big deal. I don't want to sweep it under the rug. I want to yell, I want to scream, I want to cry. I want someone to be as angry about this as me, to tell me that its ok to be enraged and to be enraged with me. I want someone to let me know that its ok to be weak and that its ok to grieve and that its ok to hate this. I want someone to tell me that this is so unfair, because then I'll know that I'm not just being oversensitive and that this really does suck hardcore. But no such person exists, because I seem physically incapable of showing any real person the pain this has caused. I sweep it under the rug for the public and leave the falling apart until private.

Perhaps it is a good thing that I have exams this week, and my surgery on Saturday. They're keeping me from doing anything stupid, I think without them this would have hit me even harder.

I had my first exam today, it was ok. My last one is on Thursday. Thankfully I got both my essays back and did well enough on both that I can't fail the subjects no matter how well I do in the exams. This is a relief for now, but I wonder how happy I'll be with myself if I don't do excellently when results come out..... Part of me is tempted to pull out the medical certificate and not do the exam. I thought I could do it, but wasn't counting on fibro coming out of the hat. Maybe I still can, maybe I still should. I don't know the difference between being lazy and giving myself the care I need. I don't know how much I need to do and how much are my unrealistically high expectations telling me what I have to do. I don't know, I don't know, I don't know and its driving me crazy.

I hate being like this, I hate being such a mess, I want this to be over, I want to know who I am again.

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Comments from the community:

Babz

I will scream with you... I feel enraged that you have had your skating threatened once more... the pain can be managed but not all the symptoms... I hate you have had this to add to your bundle ... I have a friend with fibromyalgia and depression and bpd... and in a wheelchair... so your pain is understood... i know from watching her how she struggles... so scream and kick the furniture... not the cat or dog...

Good luck with the surgery.. and the exams... you do well because it is you...

maybe GP can give you some idea of how to manage fibro... i know ppl talk of diet helping.. not sure...

anyway take care

rgds
cate

Written by cateblack, 17. Jun 2008 06:16 PM

Babz

Good luck with the exams and I am glad you passed the essays for both subjects - all that stress for nothing.

For the ignorant deppies like me what is fibromyalgia and can it be treated and how does it affect your skating and what is the operation for that you are having on Saturday??? Sorry I'm ignorant and willing to admit it. New to some of these terms. I think I have more labels with all my mental illnesses but I'm not going to compare with you. Let officeworks win!!!

You concentrate on your exams and pass. No medical certificate.

Go Babz!!!

Mrs Studying1

Written by studying1, 17. Jun 2008 06:44 PM

"Fibromyalgia is a chronic condition characterized by widespread pain in your muscles, ligaments and tendons, as well as fatigue and multiple tender points — places on your body where slight pressure causes pain. Includes widespread chronic pain, fatigue and sleep disturbances, IBS, headaches, facial pain, heightened sensitivity, depression, difficulty concentrating, mood changes, numbness/tingling, dry skin/eyes/mouth, chest pain, painful menstrual periods, dizziness and anxiety". Even better is that it doesn't go away, you just have to manage the symptoms as best you can with a combination of pain medication, sometimes anti-deps/anti-epileptics can help with the sleep, natural medicine such as acupuncture and massage, and diet for the IBS.

It affects my skating, because you're not supposed to over-exert yourself, only do moderate exercise, avoid stress and get enough sleep. Skating means I regularly work myself hard, get stressed because of the pressure and often end up exhausted because of the long days I have to fit in training and DBT. Also the fact that its an ice rink isn't good because cold can make fibro pain worse.

The surgery on Saturday is my scar surgery - having the mass of scars cut out of my left arm to leave one scar that will look like I have had a broken arm instead of self harm.

Studying, I know you mean well, but don't ever try and play the 'I'm sicker than you' card with me, people's pain/illness/whatever you want to call it cannot (and should not) be compared.

Written by babz, 17. Jun 2008 09:48 PM

Sweetheart Im sorry to hear that you are going through alot of pain right now. My heart goes out to you. Im hoping that once you get this fibro under some sort of control that things will get a little easier for you. There is one good thing though knowing the cause of your illness (being diagnosed with fibro) will help with your recovery hunny.

Good luck in your exams hunny.

Love, care and support always
Amanda xxxx

Written by Deleted_User, 17. Jun 2008 10:28 PM